Survivor Spotlight: Deborah Steadman 

What do I want you to know about me?

My name is Deborah Steadman and I am 50 years old.  I have been battling depression all of my life. I have a Pacemaker and low blood pressure problems for which I have to take medication for it. My blood pressure drops into the low 40’s. The medication is working.

 I have severe back problems. I had surgery on my back in 2013. I have suffered another back injury which may require another surgery soon.                 

I raised two kids on my own. I worked at Waffle House for 35 years and I also worked side jobs to provide for my children. 

                       My Son, TJ

              My daughter Victoria             

I met a Wonderful man named Randy Haulbrooks.He made me quit my job so I could be at home with my children. He raised my children like they were his own. I thank God for him.  He also has bad health problems. 

                    This is Randy 

I lost my Daddy when he was only 45 years old . He died of cancer. He was in remission for 13 years. He was a Fighter!  I was truly crushed when he passed but I took comfort knowing his pain and suffering was over finally. 

                       My Daddy

In 2013, I lost Peggy Mode. This was Randy’s Mama. She was my best friend and my Mother in law. I loved her very much. I took care of her until she went home to be with The Lord. She was a great inspiration to me. She loved my children and she loved them as her own Grandchildren. We all called her Nanny. She was always there for me. She always helped m with all my problems. I miss her so much. 

                            Peggy                      

She was raising her Granddaughter, Kelly Haulbrooks at the time.   She is mentally handicapped. She now lives with me and Randy.

                         KELLY                        

My Mother is in a nursing home. The Doctor’s gave up on her 20 yrs ago.  She is still here with me. I love my Mama so very much♡ My Mama is a wonderful inspiration to me too. I thank God every day for her. She is a Fighter! She is a Miracle♡

                       My Mama

My goal is to inspire people and spread’s Gods Word. This group means so much to me. I am honored to be in the group. I love each and every one of you. You are all in my thoughts and prayers everyday. 

           Me! Deborah Steadman 

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SURVIVOR SPOTLIGHT:CHARMAINE JENSEN 

What do people want to know about me?

There are two important things in life that keeps me going and that is my son Matthew who is soon to be 30 years old (is Autistic and has had challenges in life, but is a blessing) and my relationship with the Lord Jesus Christ. I have been a Christian most of my life. Thank you to my mother for starting me at going to church at a young age, it continued to the present.

The photo below is a picture of my son and I when we took a cruise to the Scugog Islands about 6 years ago.

I have been a survivor most of my life and I have never been the type of person to allow for any challenge in life to hold me back. Yes, I must confess, I like anybody will have my days of frustrations and feel like want to give up. However; there is something inside of me, that tells me that I can never quit!

Now to share with you all what I felt was the most frightening experience in my life. A few days before my DVT, I had been sleeping on the couch for a few weeks and I was quite ill. I honestly felt like I was going to die and so I obviously subconsciously did not want to die alone, earlier on in the day of April 29th, I chose to go into the bedroom to sleep.

On the late evening of April 29, 2012 below my breath, I screamed out to my husband the best that I could; as he was in another room. I was in severe pain in the chest/lungs and starting to have more difficulty with my breathing to the point of losing my breath. My husband immediately rushed into the bedroom and he then called the EMS. When they had arrived, my husband pointed out my lower left leg from knee down to ankle as being a very bright red. He told the EMS that he felt it was DVT and that it was a good thing that he called then, as I was losing consciousness.  The EMS paramedics continued to exam me in the hallway and I was bagged on route to the hospital. I felt very blessed to have had a great team of paramedics; as they stuck around at the hospital until they were certain I was going to be okay and in a room of my own.

Upon arrival at the hospital, I was examined by a team of doctors and nurses. I was sent for a CT, and an ultrasound of my heart and lungs, and a dobbler of both legs.  It was then determined that I had a severe DVT of my left leg from ankle to pelvis (through the heart and into both lungs) a bilateral pulmonary embolism.  A CT scan and an ultrasound of the lungs showed pleurisy and pneumonia, and of the heart a left ventricle dysfunction, a severe tachycardia.

I was admitted into the hospital for 6 weeks, in close observation for three (3) weeks and just over three (3) weeks on a rehabilitation floor.  Two days after being in the hospital, my right lung collapsed and my heart AFib. I was on oxygen for just under two weeks.

The past couple of years have been very difficult for me from not having the proper care from what I have gone through from the DVT and unfortunately, I have been told it is past too many years for most doctors here to be able to assist me.  I had an appointment with an IR doctor last year and I was told by him that I have severe chronic PTS in my DVT leg and neuropathy.  I recently had MRI done on both legs and I arthritis in both joints from the knee down to the feet.  I am however; very lucky to have found a new very good family doctor as of June 15, 2015 and I can only pray that my health condition will not worsen to much more. I am very hopeful and optimistic about this doctor.

Now there is much more to me than just my health!  I am hoping by the time that I turn 60+ that I can go to my local college, take a course and get my diploma as a Mental Health Support Worker and/or possibly a position as a Peer Support Worker in another field that is common to that of an area of a health issues I have experienced and I can support another person.  In preparation for this the past couple of months, I have been taking a few courses i.e. group facilitator course, introduction to peer support worker course, advocacy course and recently got my Mental Health First Aid certificate.

Now I am sure you all would like to know what I do to unwind and/or destress. I will pull out my Corel Paint Shop Pro X9 program on my lap top and will create some graphics and some of you might have already seen my graphics on my Face Book page.  Here below is an example of what I create.

I have gone through challenges which include breast cancer, my DVT in 2012 and then losing my mother in December 2012.  It has only made me want to hold on to life more and I know that there is so much more out there for me.  You know something, GOD has a purpose for me still! 

What I am trying to do now, is to take life one day at a time.  I am hoping for 2017 to be a better year for me at so many different levels.  I am going to remain optimistic, positive and not give up!  Remember I have got friends out there!

I learned about Surviving DVT a Silent Killer nearly two years ago through a nurse in my own community.  I feel very blessed to be a part of Lisa’s Survivor group, as this group has been a tremendous lifesaver and huge source of support for me in so many ways. I plan to stick around for many more years.

– Charmaine Jensen

SURVIVOR SPOTLIGHT:Barbara Zeynep Turkdal

In Mid December of 2012 I had surgery for Achilles Tendon repair and removal of bony growth on outer side of left ankle. 

The cast was too tight!  Twice I had new casts applied for this reason.  It was a story winter and we were making appointments in-between ice storms.

I had to keep it elevated to keep the swelling down.  This limited my mobility.  As I recovered from the surgery, I did become more active around the home on my one good leg.  I was not allowed to step on the surgical foot for 12 weeks or risk damaging  the  repair. 

In early January 2013, I was out to dinner at a restaurant.  I was still using the wheelchair as the ice really presented a danger for me being on crutches.  I was so uncomfortable at dinner that night, I had to stand up to relieve my pain in the groin area and my lower back region.   I was never so glad to get home and be able to lie flat to get the pressure off inside of me.  I attributed this to the cold of winter and my previous back surgeries. 

I continued to try to stay active at home and at one point, needed to see something in our business office in the downstairs basement.  I was able to get down there and do my chore, but when I was coming back up the steps, I was crawling  and became so winded that my husband brought a chair to the top of the steps for me to sit in and catch my breath before I could go back to my bedroom.  I was surprised at how “out of shape” I had become in such a short time! 

Over the next day, I noticed that my thigh above the cast was extremely swollen.  In my simple mind, I figured it was because the swelling from the leg had nowhere else to go but above the cast.  I focused on elevation of the leg, but the leg had become painful to the touch and grew even larger over the next day.  

That night, I began to realize I needed medical attention.  My problem was that my surgeon worked for an orthopedic group that had their own Ortho hospital.  My doctor did not have privileges at any of the regular full service hospitals.  I knew I needed to see a medical doc for the swelling….thinking cellulitis might be my problem. Here, I am embarrassed to admit that I had worked in the medical industry for years in Reception, Switchboard & Insurances.  I had a base of knowledge, but it failed to kick in to assist me in thinking on my own situation through.

Since it was the middle of the night, my husband and I made plans to go to the Emergency Department the next morning.  He was used to me making the big decisions about my health.

I share this preamble to show how easy it was to dismiss my very urgent symptoms.

I was taken to an exam room before my husband parked our car.  I was still unaware or in denial about the severity of my situation.   God, Above, was with me that morning. Four things happened that saved my life.

1) The Physician’s Assistant on duty that morning was well versed in  DVTs & PEs.

2) My family doctor had come to the hospital to see his inpatients and saw my name on the computer for being in the ER.  He came to see me first.

3) The Vascular Surgeon and his partner were in hospital for a procedure on another patient that day.  They evaluated my test results and me immediately.

4) Because my leg had been operated on by an outside surgeon, no one wanted to touch it. Finally an Ortho group on call came to look in on me. One of their Physician’s Assistants just happened to be an old friend…I had even gone to his wedding years earlier!  He stepped up to the plate and had my cast cut as soon as he could get near me! 

My next week was a blur. I was in ICU for two days.  I remember bleeding out from the entry site of the Thrombolysis procedure that had been done to clear the clot from my hip to my foot.  The following day, they went back in my vein and placed a stent to help unkink my vessel and hopefully prevent further clots. 

 I remember that they suspected the blood thinners of starting an ulcer in my stomach which caused it to bleed. 

I was scared, but refused transfusions.  Labs were done around the clock.  I had previous experience of helping a patient who needed regular transfusions and I knew my numbers still were not critically low. 

I remember being on Oxygen for my PE filled lungs.  I remember getting winded just getting to the bathroom with my walker for which I used as my crutch.  But I just kept going…knowing I wanted to leave the hospital and be in my own bed!

I needed to get out of the hospital to attend a financial hearing regarding my mother and her nursing home.  I had waited over two months for this appointment.  I begged my family doctor and made promises to return if anything went wrong.  It was during this time that he told me how close to death I had been.  When he wiped a tear from his eye, I began to understand the past week’s reality. 

I left the hospital, attended the hearing, had my foot and leg attended to by the original surgeon.  The hospital had only removed the cast…nothing else.  I became caught up in the Coumadin/Warfarin cycles of lab test, waiting for phone calls, and adjusting the meds.  I never really got settled with the blood thinners, so I was continually going for more lab tests every few days. 

It was after I was home that I settled into a deep depression.  Why had I survived when so many others do not?  What purpose did God have in store for me? Would I ever be able to breathe properly again, or would I be breathless forever?  Would I always be covered in bruises?  I wasn’t sure living was right for me.  Not only was I severely short of breath, I was so fatigued and I was still hauling the surgical leg around.  Everything I had to do , I needed help!!  This was definitely not like the old me !  My resulting mood was downright miserable and cranky.  I disliked myself. Everyone was so NOT understanding….(I felt).  They seemed to think I was okay now and should be back to normal…..HA !  

Then I found the Surviving A Silent Killer (DVTs & PEs)Facebook Group at:

https://www.facebook.com/groups/survivingasilentkiller/

There, I found Lisa Wells and many others who had experienced just what I had or similar ailments! At first I was skeptical, it is my nature, but having found others who understood my concerns and answered my questions as best as they were able, saved me from deep despair.  The Survivors Group made such a positive difference in my outlook on life.  I wanted to stick around, I wanted to improve. I wanted to help myself in any way I could.  Any question would be addressed tenfold at the click on the keyboard. 

Fast forward to the Present:  I was a very Lucky Lady  from the start. All the medical doctors felt the DVT & Bilateral PEs were provoked by the surgical cast and the ensuing immobility. Due to their agreement, I was allowed to discontinue the blood thinners after one full year of taking them. I was watched very closely and thus far – three years later – am ok.

 When I travel, I wear compression stockings.  I also at times need to thin my blood for air travel and long driving trips. I get up and walk around, I do leg exercises.  I do not cross my legs. 

I need to have Greenfeld filters placed prior to surgeries (I have since come through Uterine and Thyroid Cancer surgeries successfully.) Then, after the surgeries, the filters must be removed. 

I will forever be alert to signs of another DVT….and I do have occasional leg cramps that scare me.  I look at my limbs for any suspicious swelling.  I worry when I catch a chest cold or have an asthma attack…I am on a mission to never ignore symptoms again. 

The year 2013 changed my life forever.  I can say that now I feel good.  It took a really long time to get to this point. I am glad I stayed the course and have learned my limitations.  One day busy, the next day restful.  Not wanting to reduce my husband’s role, whom I cannot say he understood what was happening to me, he did stand by me (and my moods) and helped me to regain myself once again. 

I was tickled when Lisa asked me to share my story.  My first thought was, “What can I offer?” 

A day later,  I know that if my experiences touch just one other person who needs to know there is life after DVTs & PEs, then it is worth sharing.